HELP US END DEATHS DUE TO CHILDHOOD BRAIN TUMORS
THE DESTRUCTIVE IMPACT OF BRAIN TUMORS
The best, brilliant minds are working on cures for brain tumors: not one drug has been developed.
WHY?
It’s because these great minds don’t have access to the critical data essential to discovery. We are working to remove the barriers that block access to this data across the entire data ecosystem:
GOAL: ACCESSIBLE DATA IN REAL-TIME
Building Bridges To Cures Through Strategic Alliances
Focus:
Data Collection
Identify what needs to be collected and in what format
Data Storage
Create efficient databases formatted to process meaningful insight
Data Access
Provide easy, real-time access to facilitate analysis and discovery
Funding:
Research Funding: St. Baldrick’s Foundation – Member, Board of Directors
Goal:
Define & unify terminology
Model for open science
Facilitator for national database
Our Role:
Allied Partner, Fundraiser
Executive Council Member
Engagement Group